During the acute episode
Eye involvement can evolve quickly. Published ophthalmology reviews emphasize early examination and close follow-up during acute SJS/TEN.
SJS/TEN Ophthalmology ProgramFor patients, families, and care teams
SJS/TEN eye care at every stage.
From the acute episode through long-term recovery, find ophthalmology education, specialist directories, and research opportunities built around the needs of people affected by SJS/TEN.
SJS/TEN & the eye
Eye care matters at every stage.
SJS/TEN can affect the eye surface during the acute illness and later in recovery. The right care plan is individual, but early ophthalmology involvement and continued follow-up are recurring themes in the medical literature.
Through recovery
Follow-up care may focus on the eyelids, tear film, conjunctiva, and cornea as the ocular surface heals.
For long-term eye health
Ongoing care may include an ocular-surface specialist and, for some patients, evaluation for scleral lenses or PROSE treatment.
General education only. Read the clinical review of acute and chronic ocular care or discuss your circumstances with your medical team.
Patient resources
Start with what you need today.
These links lead to established professional or federal directories. We will add reviewed STOP SJS guides as the program grows.
Specialist care
Find an ophthalmologist for your SJS care
Search the American Academy of Ophthalmology directory and ask about cornea or ocular-surface experience.
Search the AAO directory ↗Specialty lenses
Find a scleral lens or PROSE provider
Explore a network of clinics that care for people with complex corneal and ocular-surface disease.
Find a PROSE clinic ↗Research
Explore ongoing studies
Search ClinicalTrials.gov for current SJS/TEN studies. Study status, locations, and eligibility can change.
Search ClinicalTrials.gov ↗Specialized care
Bring the right questions to your visit.
Consider asking whether your clinician regularly manages complex corneal or ocular-surface disease, how urgent concerns are handled, and which other specialists may be part of your care team.
STOP SJS is being built as a starting point—not a replacement for individualized medical care.
View care directories
Website status
A careful first version, with more to come.
Provider listings, patient guides, and study summaries will be expanded and medically reviewed before publication.
In development